Charlene Son Rigby is the Chief Executive Officer of Global Genes, a non-profit organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally.

Rigby has spent her career building organizations at the intersection of data, technology, and life sciences. She was previously Chief Business Officer at Fabric Genomics and held executive roles at enterprise software and genomics companies, including Oracle and Doubletwist. She started her career in neuroscience research at Roche.

When her daughter was diagnosed with a rare genetic disease, Rigby co-founded the STXBP1 Foundation to help build awareness and accelerate discovery of new treatments. Her unplanned connection between her personal life and profession has helped push forward the search for a cure for her daughter and kids like her, and given her work deeper meaning.

Rigby holds a BA in Human Biology from Stanford University and an MBA from the Haas School of Business at University of California, Berkeley.

Milken Institute, Technology, Non-Profit, Health, Biotechnology, Genetics, CEO, Female Leadership,