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Hayley Goleniowska          

Down Syndrome Advocate & Author of Blog Downs Side Up

Hayley Goleniowska, the author of the blog DownSide Up is a former language teacher and mom of two. Natty, the youngest, has Down syndrome. Goleniowska's ignorance of Down syndrome came to the fore when her daughter was born, motivating her to create the world-renowned blog Downs Side Up. It challenges fear and stigma while celebrating the narratives of those with the condition and encouragement and advice to new families with a Down syndrome diagnosis. The award-winning website is part of the greater work Goleniowska does toward inclusion of those with a learning disability. Her daughter Natty was the first UK model with a disability to feature in a national Back to School campaign and she believes we all need to see ourselves represented in the media.

Goleniowska, along with her daughter Mia, published a children's book, "I Love You Natty." She aims to gently change perceptions of the condition and support other parents through her inspirational blog, writing articles and support materials for new parents and lecturing teachers and medical professionals to value everyone’s worth equally and learn how their words impact on new parents, as well as campaigning at parliamentary level and through media interviews. She has recently become a special schools academy trustee. Goleniowska ensures diversity in a gentle, heartfelt way.

News


What I Have Learnt Since Becoming An 'Expert' In Down Syndrome
My daughter is not ‘special’ or ‘inspiring’ but an essential part of our family and community. Eleven years ago I knew nothing more than a handful of outdated generalisations about Down’s syndrome. Like many of you I undoubtedly thought I knew what it meant, how those who have the condition live their lives. But the notions I clung to when pregnant with our second, much-wanted baby, couldn’t have been further from my current reality.
Down's syndrome child Natalia begins modelling assignments
Natalia's mum, Hayley Goleniowska said: "People fall in love with her every time they meet her. She is living proof that Down's syndrome is very beautiful and special."

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