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Josh Sommer    

Executive Director, Chordoma Foundation

Josh Sommer is Executive Director of the Chordoma Foundation, which he co-founded to speed the pace of chordoma research after he was diagnosed with a skull-base chordoma in 2006. Following his diagnosis, Josh spent two years studying chordoma in the lab of Dr. Michael Kelley at Duke University. In 2008, Josh left the lab to lead the Chordoma Foundation after receiving an Echoing Green Fellowship for social entrepreneurship. To complement his work with the Foundation, from 2008 to 2011 he served as a Fellow in Strategic Philanthropy and Health in Duke’s Program on Global Health and Technology Access, where he studied models for sharing of scientific data and biological materials. He currently serves a member of the National Cancer Institute Director’s Consumer Liaison Group, the Moffitt Cancer Center Total Cancer Care External Advisory Board, and the Board of Advisors of the Fibrolamellar Cancer Foundation. For his efforts to advance chordoma research, Josh was honored by ABC News as a Person of the Year in 2008.

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